Sunday, August 5, 2012

A Workout For Someone With MS

For some it's rolling out of bed and then rolling to the kitchen in the morning. I'm lucky. I can do most things that people without MS can do. Sure, balance is an issue at times. My dog can attest to that. Long distance running is not on the menu. I am somewhere below that. Somewhere between housework and weight training and between the two, I don't prefer housework.

I've been slowed down lately with a heel problem and tendinitis in my elbow. The heel pain, after two months, is finally starting to subside. The elbow, ugh! Lately, it has been tough to open a bag of potato chips, it is so sore! My elbow, I can't rest. I have to use it. I have to eat those chips...

Anyways, when things calm down, and I trust they will... I will be getting back into my workout routine. I have an incline workout bench. You know, similar to the ones they sell on TV. Anyways, I love it. It allows me to use my body weight as the movable object. The angle of the bench changes the force it takes to move me. I can do it at home. I don't have to travel to the workout facility. I don't have to go into the dirty locker rooms at the workout facility. I am not working out on equipment that has seen the sweaty backs of thousands before me. My dog can jump up on my stomach and ride with me through my reps! She does! She really does! Jumping rope has become a feature of my workout. So simple, but so good for your cardio!

Coordination. Endurance.

Two years ago we had an employee Olympics. We had a relay and I chose to do the jump rope portion. I failed and was unable to complete the task. Someone literally jumped in to do it for me so our team could continue. I was embarrassed. Well, now I know that I could do it and with flying colors. So, now I am waiting to heal so I can get back into the working out that I love to do. I love it because I can see and feel the results. There is nothing better than being able to see and feel improvement, and to know that you earned it!

Ampyra Arrives Tomorrow

I think the comments I have read about Ampyra are split right down the middle. I have read that Amprya is a wonder drug that gives people the ability to walk that MS took away. I have also read the opposite, that the symptoms of MS have sped up. What else? Oh, the sick feeling and pain of taking Ampyra is worse than MS and not worth any insignificant gains. How about this? Nothing.

So, here I am. I am very worried about taking this drug. The side effects scare me. I do not want MS to be sped up by taking something else that is meant to help. I don't want pain and extreme discomfort when there is none to start with. I can see myself receiving the drug and sitting and waiting and reading more, researching more. Then I will decide what to do with it. Decision time in 24 hours.

Enjoy your day. I'm off to the country for an ATV ride.

Wednesday, August 1, 2012

No Link Between CCSVI and MS. Ampyra Is Coming. Other News.

I had my semi-annual MS doctor visit last week. Booooo!!!

I go the the Department of Neurology at The University of Texas Medical School at Houston. I have learned to like my doc there. But, she, like myself, is always fighting an uphill battle. While there for my visit, she reads back what I told her were my ailments from the previous visit. So, what I found out was, I was ailing from pretty much the same complaints that I was ailing from a year ago. So, Betaseron seems to be working and I will continue that treatment. But, this year, something was added to my arsenal. I was prescribed Ampyra. Ampyra is called the "walking drug" in the MS circle. At least, it is by me. I can already walk. So, why am I getting it? I have some increased numbness in my lower legs, more so in my left leg. Reading some of the reports on Ampyra on Trevis Gleason's Everyday Health Life With Multiple Sclerosis Blog I am a little concerned about the side effects and also whether I will actually experience some benefits. Most of the reports are from people with serious MS that require the aid of a cane or walker, to start with. I need no help to walk. I have experienced numbness, a slight lack of control and balance issues, when it comes to walking. I still jump off the tailgate of my truck.

We all know there is no cure. We all know that the symptoms of MS are destined to get worse as time goes by. But, I can still do things. Do I really need Ampyra? Anyways, long story short, Ampyra is delivering two months supply and it will be here next Monday.

Next subject. Is there a link between CCSVI and MS. Will it surprise anyone to know that the study recently done at UT, "probably says that there is no link"? I don't think it is official. But, I took part, and I had the feeling that there was no link. I received indication that it appears there is no link. This was just one study. I will leave it at that, because I am not a doctor or researcher. I am just a MS patient and I donated my body to this study and let them do what they wanted.

So here I am. I have not found love. I am still searching on that front. It will hit me some day, I'm sure. Who will I be when it does is the question.